Friday, March 29, 2024

More Quotes from I Will Die on this Hill

 "Perhaps one of the most frustrating parts of the term 'autism parents' or the more gendered variants 'autism mom' and 'autism dad,' is that many of these parents elect to use identity-first language for themselves, while denying autistic people use of identity-first language for themselves."

Ding ding ding!


"As a parent, you've always done everything you can to protect your child, and that doesn't end with an autism diagnosis. Protect your children's privacy and bodily autonomy. Learn to speak about support needs in a way that will not be hurtful to your child, should they overhear you."

I am in this passage and I really wish I wasn't.


"Autism is a neurodevelopmental disability.... It's not a disease or an illness. There is no expiration date on the diagnosis. Your child is not going to be more of less autistic based on whether they started a specific therapy at a certain age. Don't allow a profitable industry to push you into an action that you have not researched thoroughly. If the autistic community says something is harmful, listen and research. If the autistic community says something is helpful, listen and research." 

Need to cut and paste this one for parent forums.

"...we get sucked into a world of normalization, where we're convinced that this therapy and that therapy will 'work,' that it will make out child 'while' and 'fully normal.'... So, enter an autistic advocate, who on an unconscious level is already undermining 'the dream' just by existing, because that autistic advocate is a grown-up fully autistic version of the parent's autistic child.... to be shown that autistic children grow up to be autistic adults who are still just as autistic can be a shock."

Not something I personally relate to, but I found it an interesting point.


I can't find a specific quote for the last point that struck me, but it was about how people act like an autism diagnosis is a license to ignore everything that's known about child development, such as the fact that what's basically a 40 hour work week for a young child is severely detrimental.  An autistic child still has emotional and psychological needs that must be met for them to thrive. 

Anyway, read this damn book! 

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